Question

What are some issues you are likely to encounter with a study that focuses on childhood disease and illness? For example, what ethical and legal issues must you consider, and how can you cope with such issues as retention? Can you please put the references

Answer 1

Ethical and legal issues while dealing with child, having illness and ways to cope

1. If a study is conducted on a childhood disease, the presence of child is necessary.One has to face challenges not only with the child but also with the parent
2. If the children cannot able to give full consent, it is vested in parents or guardians. However, children may acquire ability to give full consent during the course of study or some part of research.
3. Sometimes you may think it is easy to deal with the child rather than their parents
4. Think about the nature of a child
5. The informed consent should contain adequate information, voluntariness, and capacity to understand the information
6. Provide ethical resons, why you are conducting studies in children
7. Outline the regulations
8. Outline the roles and responsibilities of research ethics board
9. While conducting a study, describe who are vulnerable.
10. Parents often think about the outcome and nature of the study, which may harmful to their children
11. Identify Safeguard for vulnerable populations
12. Review issues of consent. Sometimes parent may reluctant to conduct the study. It depends on how to convince the parent
13. Sometimes parent may confused about the study results.Describe the obligation to offer the summary of studies result
14. Outline the roles and responsibilities of research ethics board,
15. Convince the benefits of research. However, never conduct studies forcefully. The researcher should always acknowledge the parents
16. Segregate the children who needs emergency care while doing the research
17. Children should be involved in the decision to take part in the reasearch as their development capacity dictates
18. Applying evidence based practice
19. Respect for privacy and confidentiality
20. Allowing research benefits to all populations. Do not involve partiality
21. Respect informed consent.
22. Avoid harmful therapies to children
23. Supporting developing autonomy in children, considering research participation
24. For references, try pediatric child health