In: Nursing
give an example of a medical intervention that might be justified by a patient's subjective quality of life judgment. (philosophy/ethic answer please)
Subjective quality of life (QOL) is becoming a standard health outcome measure especially for people with multiple, chronic, functional, psychological, or incurable illnesses. A good instrument is the pre-requisite of any measurement, which is in the form a questionnaire for QOL. This chapter reviews the concepts, principles, applications, scoring methods and selection criteria of subjective QOL measures to enable users to choose the most appropriate instruments for their purposes.
Quality of life (QOL) is a logical outcome measure of the effectiveness of modern health care much of which aims at relieving suffering and restoring normal living. The essential concepts of QOL measures are subjectivity, multi-dimensionality and well-being. Health-related quality of life (HRQOL) focuses on dimensions that are modifiable by health. General health perception, psychological well-being and functioning are essential dimensions of HRQOL while symptoms and vitality are important causative variables.
Quality of life is a latent variable that cannot be directly measured. It needs to be converted to indicators of its component dimensions and domains to be quantified. To serve the purpose, the indicators must be valid, important, representative and adequate. A QOL measure presents the indicators as items that can be rated on response scales, which are then presented as a profile domain scores or a composite index of quality of life.
Hundreds of QOL measures have been developed mostly for the assessment of HRQOL. Generic measures that are applicable to people with different health status are more suitable for population and comparative studies. Disease specific measures tend to have high sensitivity and are best used for evaluative purposes. Preference-based measures of health (PBMH) convert a multidimensional QOL state to a fractional index for the calculation of quality adjusted life years (QALYs) and cost-effectiveness. A critical appraisal of the nature and psychometric properties of a QOL measure can assure that it will meet the needs of the user.
Abbreviations:
COOP/WONCA Charts
The Dartmouth Corporation Functional Health Assessment Charts/World Organization of Family Doctors
EQ-5D
European Quality of Life-5 Dimension
HRQOL
Health-related quality of life
HUI-3
Health Utilities Index-Mark 3
ICC
intra-class correlation
MCID
minimal clinically important difference
MID
minimally important difference
PBMH
preference-based measures of health
PRO
patient reported outcome
QALYs
quality adjusted life years
QOL
quality of life
RS
rating scale
SD
standard deviation
SEM
standard error of measurement
SF-12
The Medical Outcomes Study 12-item Short-form Health Survey
SF-36
The Medical Outcomes Study 36-item Short-form Health Survey
SG
standard gamble
SIP
sickness impact profile
SRM
standardized response mean
TTO
time trade-off
VAS
visual analogue scale
WHOQOL
World Health Organization Quality of Life Assessment Instrument