Question

For this discussion you will be divided into two discussion groups. Group A will review the Jewish Chronic Disease Hospital Study. Group B will review the Tuskegee Syphilis Study. There are many high quality resources on the web that address both of these topics - please make sure that you are reviewing high-quality, scholarly sources, such as your textbook, sources from the school library, .gov, or .edu sources. If you have a question regarding what a scholarly source is, please refer to the resources located on our Nursing Library and Learning website For your initial post, you will review the assigned study and answer the following questions: Give an overview of the study. Discuss how at least 3 of the 6 rights/guidelines listed in the ANA Guidelines for Protecting the Rights of Human Subjects were either upheld or not upheld.

Answer 1

Jewish Chronic Disease Hospital Study:

In 1963, studies were undertaken at New York’s Jewish Chronic Disease Hospital to understand whether the body’s inability to reject cancer cells was due to cancer or debilitation.

Consent given orally however no mention of injecting cancer cells was mentioned . No documentation of consent.

The researchers felt that documentation was unnecessary because it was customary to undertake much more dangerous medical procedures without the use of consent forms. The researchers didnot inform patients that they will be injected with cancer cells , because it will frighten the patients unnecessarily. The review proceedings were conducted by the Board of Regents of the State University of New York, it was found that the study had not been presented to the hospital’s research committee and that the physicians responsible for the patients’ care had not been consulted. The researchers were found guilty of fraud, deceit, and unprofessional conduct.

*Protection of the Rights of Privacy and Confidentiality

*Protection of Human Participants in Research

*Patient Protection and Impaired Practice

These are three among six rights not upheld.

Tuskegee syphilis study:

This study was initiated in the 1930s as an examination of the natural history of untreated syphilis; it continued until 1972.

More than 400 black men with syphilis participated, and about 200 men without syphilis served as controls. The men were recruited without informed consent and, in fact, were misinformed that some of the procedures done in the interest of research .A report of the study indicated that the death rate among those with syphilis was about twice as high as it was among the controls. In the 1940s, penicillin was found to be effective in the treatment of syphilis. The study continued, however, and the men were neither informed nor treated with the antibiotic.Death of patients lead to public outrage which led to the appointment of an ad hoc advisory panel by the Department of Health, Education and Welfare to review the study and advise on how to ensure that such experiments would never again be conducted.

* Protection of Human Participants in Research

* Patient protection and Impaired practice

* Protection of patients health and safety by acting on questionable practice

These are three among six rights not upheld.