Question

How would someone respond to this question using the ethical principles of: RAWLISM scenario #1 Jecker and Pagon, in a section omitted from the above reading, present the case of a newborn girl we?ll call Ginny Rutten. Ginny was born with epidermolysis bullosa, a genetic disease involving the blistering and sloughing off of the skin and mucous membranes- the whole thickness, down to the fat and muscle. Ginny cannot drink, because the lining of her mouth is blistered and swollen, and so can take no nourishment by mouth. Areas of her skin have eroded, producing patches of raw flesh resembling third-degree burns. Because of the breakdown of her skin, she suffers constant pain; also, the dehydration it permits produces electrolyte imbalances that put her at risk of heart arrhythmia and death. Ginny has a disease for which there is no cure and not even a treatment to prevent the blistering and peeling of her skin. In addition to pain from the skin loss, those with the disease lose their fingers and suffer from a drawing up ? contracture- of their arms and legs from scarring. They need total care their entire lives. Moreover, there is no case of a spontaneous cure or even a lengthy remission on record. Ginny has a severe form of the disease and screams in pain when she is awake. She is sedated by a morphine drip and sleeps in brief cycles. Her physicians and the hospital ethics committee debate the question of whether to feed Ginny artificially, either by an IV drip or through a surgical opening into her stomach, and so keep her alive. Her parents ask that no effort to prolong her life be made. Ginny Rutten is a newborn female with a host of defects and a disease that is incurable and painful. Her parents are considering asking that the hospital refrain from feeding her or sustaining her in any way and that no further efforts be made to keep her alive. Is this a morally correct request?

Answer 1

Epidermolysis bullosa (EB) prognosis depends very much on the disease type they inherited .some forms are mild and improve with age ,while others are so severe that child is unlikely to live into adulthood .Fortunately ,the milder forms are most common

The potential of modern medical practice to prolong life through technological means has provocked the question of what course of action should be available to the family in case of extreme physical suffering,especially if the patient is incapable of choice.Passively doing nothing to prolong life or withdawing life-support is a legal issue .on the other hand death with dignity laws is only for   competent adult state residents who have terminal illness with a confirmed prognosis of having 6 or fewer months to live .

In this condition with the result of better treatment their is a chance to increase the life span   of this child ,so prevention of artificial feeding measures is immoral and legal offence

9e